Chammi's Blog

Sept.13, 2021

Lacking other stimulation, I like to gouge the cakes of soap if I find them. Simply find it restful to do that. Then if I find a bottle of lotion it is a party. I pace around lapping up my grief with lotion. I smear it on my hands and drip it everywhere. Back of my mind I know mom will not like it but I have to do this. My sister used to get so mad at me when I stole her expensive lotions. I even wrote a poem about that.

An Apology to My Sister

I steal lotion

From Sassy

Sweet lass Sassy

Sis loses lotion

Loses sweetness

Loosens sassy swearing

Ceases to love me

Ok yet she loves me

Now that she lives in the US and I live here in Sri Lanka she does not have to put up with me raiding her room.

Needless to say, I get lotion from mom who dispenses it gladly. I suspect it is not expensive, she buys it for my sensory gratification. She understands my sensory needs, but she wishes lotion would stay in my hands and not drip on the tiled floor. I must remind her that tile is easier to clean than carpet. The house my parents built in Sri Lanka took into account my particular idiosyncrasies. My mother had a lot of input into the design of the house so we can all live in harmony without my autistic desires driving everyone mad.

30 August, 2021

I am a person with non-speaking autism. I like to keep on writing. I notice many people like me do blogs. I think each one of us has something to contribute to the world's understanding of autism. Daresay we find something useful to do in spite of the lockdown.

Being locked down for me is strangely eerie. As a person with autism, I have struggled for a lifetime with being locked down. My lockdown is internal - my body does not obey my brain. When I want to do anything, even something as simple as getting up from a chair, my companion, usually my mother, has to prompt me many times.

Being locked down internally and externally compounds my difficulties.

It's nice to be able to write again. I am swearing I need to keep a positive outlook. But being locked down makes it hard. I am fearing my sister and brother in the US are in dire straits. I need them to be safe.

Intending to lead a productive life, we (my parents and I) moved back here to Sri Lanka. We established E.A.S.E. Foundation. My vision of productive stimulating lives for people with disabilities became my foundation’s mission. We started a center where children with disabilities, especially autism, came for a plethora of services, all delivered free of charge. Now, because of the pandemic, my productive life is at a standstill. My center where we were teaching others like me is closed. My useful life is on hold.

Fish in my pond frolic free

High in my chair I wish

It were me

But huddled in my great house I know

Fish are not free

Gobbling the food I throw

They have to wait for me

My fish

I stand at the edge

Of my pond

Shake the cup

Of fish food

The fish till then

Lazily twirling their tails

Come to attention

They somehow know

Seeing them flying through

The water

Fills me with laughter